Since I started my blog, I have mentioned several medical appointments / tests that Brennen has gone through this year. (Click here, here and here if you missed them.) Until now, I have been hesitant to share Brennen’s entire medical journey as it is very personal and emotional. Just writing this entry made me cry. Recently, while scouring the web for some answers I came across Tina at Scoliosis Family Adventures. Not only are her posts very open about her family’s medical journey, but she also reached out to me after I commented on her blog. Her email to me was filled with support and referrals (her family lives in Michigan as well). My interaction with her made me realize that by sharing Brennen’s medical journey, I may be able to offer encouragement and strength to another family.
Brennen’s medical journey began in February at his 3-year check-up. Overall, his pediatrician said he was very healthy. His asthma flare ups had decreased over the past 12 months and he had gained some weight. He was in the 10th percentile for height and the 25th percentile for weight. He has always been on the small side, thanks to having small parents. We talked about his potty training progress and she encouraged me to schedule his first dental visit. She also felt that Brennen was talking with a lisp and recommended that he see a speech therapist. Just as we were wrapping up the appointment, Brennen started to get restless and began walking around the room. Not just walking, but toe walking. This prompted a barrage of questions from his pediatrician.
Pediatrician: “How long has he been doing this?”
Me: “Since he started walking.” (He was a late walker at 16 months.)
Pediatrician: “What percentage of time would you say that he does it each day?”
Me: “At least 50% of the time.”
I honestly didn’t understand what the big deal was. It seemed harmless to me. However, his pediatrician went on to explain that if toe walking is not outgrown by the age of two, it could be a symptom of a neurological disorder and gave me a referral for Brennen to see a neurologist. I left the pediatrician’s office stunned, overwhelmed and scared. (To be continued.)