Every couple of months or so I get an email from someone asking me questions about toe walking and other items related to B’s medical journey. It always catches me a bit off guard because I haven’t blogged about it or thought much about it since the end of 2011. (How crazy is it that I have been blogging for THAT long?) But because of the emails I thought I would update you all on B’s toe walking.
In case you weren’t reading my blog in 2011 or if you just need a refresh I will bring you up to speed. At one of B’s check ups when he was 3, his doctor noticed that he was toe walking, meaning he walked on his tippy toes. He had been doing it since he started walking so it never occurred to me that it was an issue. In addition to that, his doctor felt that his speech was not on par for his age. The speech issue was rectified very quickly through speech therapy which B only had to do for a couple of months. The toe walking thing took a bit longer to “rectify”. He was referred to a neurologist who had him tested for many things. Most tests came back negative, thankfully. However, it was noted by the neurologist that B had a small degree of scoliosis that may have been causing the toe walking or the toe walking may have caused the scoliosis. Or they may have been unrelated to each other. Fortunately the scoliosis was not severe enough to warrant any sort of medical treatment. For the toe walking B ended up getting fitted for an afo or an ankle foot orthotic which would prohibit B from walking on his toes. After wearing the afo for a couple of months B was reassessed and lo and behold without the afo on he would still toe walk. We were advised that B should wear the afo for another 3 months and if that did not resolve the issue then the neurologist wanted to pursue botox injections for B’s calves. I was strongly against the idea of botox injections.
And that is where the story ended…..on my blog anyways.
So what happened after the additional 3 months of wearing the afo’s? B still toe walked. Not as often mind you but he still did it and since we were still strongly against the idea of botox injections there was no further medical treatment pursued. The reason that we were against the injections is because there was no guarantee that they would work and the risks of the procedures far out weighed the potential benefits, in our opinion.
Now at the age of 6 (or 6 and a HALF as he would say) he still does toe walk. Not all the time but he definitely does it without even realizing it. It doesn’t concern me because when I tell him to walk flat footed he does and he is able to straighten his leg without a problem. Often times toe walkers lose the ability to stand flat footed because they spent so much of their time on their toes. At this point, that is not an issue for B.
So our plan still remains the same as 2011. We will continue to monitor B’s toe walking and if we see any issues that concern us we will follow up on them but if not we will continue as we have been!